Learn more about the resources our partners provide
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Since 2004, the Davis Phinney Foundation has brought to life some of the most important programs, research, content, and events for those affected by Parkinson’s. Their Community includes people living with Parkinson’s, Parkinson’s care partners, families and friends of those living with Parkinson’s, physicians, and Parkinson’s allied health professionals.
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At Project Purple, we’ve impacted the lives of thousands of patients diagnosed with pancreatic cancer and their families. We work tirelessly to raise awareness, fund research, and support those going through their journey.
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We work with the world’s best ALS physicians and clinics to make sure people living with ALS have access to the best specialized care no matter where they live. Our Certified Treatment Centers of Excellence and Recognized Treatment Centers provide people living with ALS with compassionate care in a supportive, family-oriented atmosphere
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Easterseals is leading the way to full equity, inclusion, and access by enriching education, enhancing health, expanding employment, and elevating community. We do this through life-changing programs and on-the-ground supports for children and adults with disabilities, families, active military and veterans and local communities.
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The American Heart Association (AHA) has grown into the nation’s oldest and largest voluntary organization dedicated to fighting heart disease and stroke. A shared focus on cardiovascular health unites our more than 35 million volunteers and supporters as well as our more than 2,900 employees.
The AHA not only conducts works tirelessly researching cardiovascular and cerebrovascular disease, as well as, works alongside communities to build health equity, provide support services, lifesaving trainings, and advocating for change at government level.
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Hope in Focus is a 501 c(3) nonprofit patient advocacy organization dedicated to transforming the lives of those affected by blindness caused by rare inherited retinal diseases. Our mission is to generate awareness, raise funds for research, and provide outreach, support and education to those affected by LCA and other rare retinal diseases.
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As part of the many rare diseases supported by the National Organization for Rare Diseases, Prader-Willi Syndrome impacts affected individuals who do not feel satisfied after completing a meal (satiety). Without intervention, overeating can lead to onset of life-threatening obesity. The food compulsion requires constant supervision. PWS occurs due to abnormalities affecting certain genes and hence referred t as a genomic imprinting disorder which depends on the parent donating the chromosome leading to the chromosome defect in the child.
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The National Organization for Rare Diseases
The National Organization for Rare Diseases (NORD) has been national steward and a steadfast partner helping those who battle and are for rare disease feel seen, heard, supported, and connected. We’re a full-service, mission-driven nonprofit reimagining a future where every person wit a rare disease, and their families live their best lives.